{"id":20698,"date":"2020-02-05T07:14:00","date_gmt":"2020-02-05T07:14:00","guid":{"rendered":"http:\/\/sardstores.com\/?p=20698"},"modified":"2021-10-19T10:25:48","modified_gmt":"2021-10-19T10:25:48","slug":"eastern-new-mexico-university-roswell-zamestnanost-a-dobrovolnicka-prace","status":"publish","type":"post","link":"http:\/\/sardstores.com\/index.php\/2020\/02\/05\/eastern-new-mexico-university-roswell-zamestnanost-a-dobrovolnicka-prace\/","title":{"rendered":"Eastern New Mexico University – Roswell. Zam\u011bstnanost a dobrovolnick\u00e1 pr\u00e1ce"},"content":{"rendered":"

Eastern New Mexico University – Roswell. Zam\u011bstnanost a dobrovolnick\u00e1 pr\u00e1ce<\/h1>\n

V n\u011bkter\u00fdch p\u0159\u00edpadech mohou b\u00fdt tyto slu\u017eby kryty pl\u00e1ny soukrom\u00e9ho poji\u0161t\u011bn\u00ed a v jin\u00fdch p\u0159\u00edpadech mohou n\u00e1klady klesnout na jednotlivce a jejich rodiny, poznamen\u00e1v\u00e1 Vellody. <\/p>\n

Mlad\u00ed dosp\u011bl\u00ed s Downov\u00fdm syndromem mohou b\u00fdt ve t\u0159\u00edd\u011b \u00fasp\u011b\u0161n\u00ed<\/h2>\n

Dokonce je\u0161t\u011b p\u0159ed 15 nebo 20 lety existovalo stigma kolem toho, kolik u\u010den\u00ed by \u010dlov\u011bk s Downov\u00fdm syndromem dok\u00e1zal. \u00abLid\u00e9 \u0159\u00edkali:\u00bb Nem\u016f\u017eete nau\u010dit n\u011bkoho s Downov\u00fdm syndromem – nejsou schopni se nau\u010dit tak, jak se u\u010d\u00ed v\u0161ichni ostatn\u00ed, \u00ab\u0159\u00edk\u00e1 Vellody. <\/p>\n

Nyn\u00ed v\u00edme, \u017ee to nen\u00ed pravda, ale je na \u0161kole, aby ur\u010dila, jak\u00e9 prost\u0159ed\u00ed je pro d\u011bti nejlep\u0161\u00ed. N\u011bkter\u00e9 \u0161koly mohou m\u00edt nap\u0159\u00edklad speci\u00e1ln\u00ed t\u0159\u00eddu pro d\u011bti s obt\u00ed\u017eemi, zat\u00edmco jin\u00e9 je mohou integrovat do typick\u00e9 t\u0159\u00eddy. <\/p>\n

Barbara Nuccio, facilit\u00e1torka V\u00fdboru pro rodi\u010dovskou pomoc pro Down\u016fv syndrom (PACDS) v The Arc Westchester v Hawthorne v New Yorku a matka teenagera s Downov\u00fdm syndromem \u0159\u00edk\u00e1, \u017ee kdy\u017e byl jej\u00ed syn mal\u00fd, byl za\u0159azen do t\u0159\u00eddy s d\u011btmi s autismus. Neda\u0159ilo se mu dob\u0159e. \u00abPro n\u011bj to nebyl dobr\u00fd z\u00e1pas – po vzoru pot\u0159eboval dobr\u00e9 chov\u00e1n\u00ed,\u00bb \u0159\u00edk\u00e1. \u00abMnohem l\u00e9pe se mu da\u0159ilo, kdy\u017e byl s d\u011btmi [bez posti\u017een\u00ed], proto\u017ee se jim v\u00edce podobal.\u00bb \u201d<\/p>\n

V posledn\u00edch letech je integrace d\u011bt\u00ed s Downov\u00fdm syndromem do t\u0159\u00edd b\u011b\u017en\u011bj\u0161\u00ed, \u0159\u00edk\u00e1 Vellody. Ale st\u00e1le existuje mnoho nezn\u00e1m\u00fdch ohledn\u011b nejlep\u0161\u00edho vzd\u011bl\u00e1vac\u00edho prost\u0159ed\u00ed pro lidi s Downov\u00fdm syndromem. <\/p>\n

U star\u0161\u00edch dosp\u011bl\u00fdch s Downov\u00fdm syndromem se slu\u017eby za\u010d\u00ednaj\u00ed zmen\u0161ovat, ale v\u00fdzvy ne<\/h2>\n

\u00abJe smutn\u00e9, \u017ee mo\u017enosti pro osoby s Downov\u00fdm syndromem se s v\u011bkem sni\u017euj\u00ed,\u00bb \u0159\u00edk\u00e1 Higgins. <\/p>\n

\u0158\u00edk\u00e1, \u017ee nejv\u011bt\u0161\u00ed v\u00fdzvou pro vysoce funguj\u00edc\u00ed dosp\u011bl\u00e9 s Downov\u00fdm syndromem je dostatek soci\u00e1ln\u00edch aktivit, udr\u017eov\u00e1n\u00ed zdrav\u00e9ho \u017eivotn\u00edho stylu se spr\u00e1vnou fyzickou aktivitou a v\u00fd\u017eivou a p\u0159\u00edstup k uspokojiv\u00fdm pracovn\u00edm p\u0159\u00edle\u017eitostem. A \u017e\u00e1dn\u00e1 z t\u011bchto v\u00fdzev nem\u00e1 jednoduch\u00e1 \u0159e\u0161en\u00ed. <\/p>\n

Existuje mnoho organizac\u00ed, kter\u00e9 mohou pom\u00e1hat dosp\u011bl\u00fdm s Downov\u00fdm syndromem, v\u010detn\u011b t\u011bch, kter\u00e9 pom\u00e1haj\u00ed s um\u00edst\u011bn\u00edm do zam\u011bstn\u00e1n\u00ed, nap\u0159\u00edklad Project SEARCH, HireDS a AbilityJobs. <\/p>\n

A zd\u00e1 se, \u017ee s v\u011bkem p\u0159ib\u00fdvaj\u00ed dal\u0161\u00ed probl\u00e9my u lid\u00ed s Downov\u00fdm syndromem, v\u010detn\u011b zdravotn\u00edch probl\u00e9m\u016f. Jakmile tito lid\u00e9 dos\u00e1hnou \u010dty\u0159ic\u00edtky nebo pades\u00e1ti let, mohou zaznamenat zrychlen\u00e9 st\u00e1rnut\u00ed a \u010delit zdravotn\u00edm probl\u00e9m\u016fm, kter\u00e9 obvykle nenajdeme, dokud nejsou dosp\u011bl\u00ed mnohem star\u0161\u00ed, jako jsou o\u010dn\u00ed probl\u00e9my, osteopor\u00f3za a sp\u00e1nkov\u00e1 apnoe. (5)<\/p>\n

V\u0161echny tyto potenci\u00e1ln\u00ed zdravotn\u00ed probl\u00e9my (a ty, kter\u00e9 p\u0159ich\u00e1zej\u00ed tak\u00e9 v d\u011btstv\u00ed) znamenaj\u00ed, \u017ee lid\u00e9 s Downov\u00fdm syndromem budou pravd\u011bpodobn\u011b m\u00edt t\u00fdm l\u00e9ka\u0159\u016f. P\u0159esto je d\u016fle\u017eit\u00e9 si uv\u011bdomit, \u017ee l\u00e9\u010d\u00ed zdravotn\u00ed probl\u00e9my souvisej\u00edc\u00ed s Downov\u00fdm syndromem, ale nel\u00e9\u010d\u00ed samotn\u00fd Down\u016fv syndrom. (6)<\/p>\n

Vzhledem k tomu, \u017ee Down\u016fv syndrom je chromozom\u00e1ln\u00ed stav, a nikoli nemoc, nelze jej vyl\u00e9\u010dit ani zm\u00edrnit pouh\u00fdm u\u017eit\u00edm pilulky. To znamen\u00e1, \u017ee n\u011bkte\u0159\u00ed lid\u00e9 s Downov\u00fdm syndromem u\u017e\u00edvaj\u00ed psychoaktivn\u00ed l\u00e9ky, a\u010dkoli neexistuje dostate\u010dn\u00fd v\u00fdzkum, kter\u00fd by dok\u00e1zal, \u017ee tyto l\u00e9\u010dby skute\u010dn\u011b pom\u00e1haj\u00ed (a n\u011bkter\u00e9 klinick\u00e9 studie mohou v\u00e9st k nep\u0159\u00edjemn\u00fdm vedlej\u0161\u00edm \u00fa\u010dink\u016fm), podle National Institutes of Child Health and Human Development . (2)<\/p>\n

P\u0159ihlaste se k odb\u011bru na\u0161eho zpravodaje o zdrav\u00e9m \u017eivot\u011b!<\/p>\n

Redak\u010dn\u00ed zdroje a ov\u011b\u0159ov\u00e1n\u00ed fakt\u016f<\/h2>\n

Reference<\/p>\n

Lze syndromu Downu p\u0159edch\u00e1zet nebo jej l\u00e9\u010dit? Asociace Downova syndromu v Atlant\u011b. Jak\u00e1 jsou b\u011b\u017en\u00e1 l\u00e9\u010dba Downova syndromu? N\u00e1rodn\u00ed institut zdrav\u00ed d\u011bt\u00ed a lidsk\u00e9ho rozvoje. 31. ledna 2017. V\u010dasn\u00e1 intervence. N\u00e1rodn\u00ed spole\u010dnost pro Down\u016fv syndrom. Pro rodiny. St\u0159edisko technick\u00e9 pomoci pro ran\u00e9 d\u011btstv\u00ed. St\u00e1rnut\u00ed a Down\u016fv syndrom: Zdrav\u00ed Pr\u016fvodce pohodou. N\u00e1rodn\u00ed spole\u010dnost pro Down\u016fv syndrom. 2013. Medikace \u00davahy o p\u0159edpisu. N\u00e1rodn\u00ed spole\u010dnost pro Down\u016fv syndrom. Uka\u017e m\u00e9n\u011b<\/p>\n

Nejnov\u011bj\u0161\u00ed v Downov\u011b syndromu<\/h2>\n

Herec a komik se svalovou dystrofi\u00ed pracuje na otev\u00edr\u00e1n\u00ed dve\u0159\u00ed pro dal\u0161\u00ed p\u0159\u00edb\u011bhy se zdravotn\u00edm posti\u017een\u00edm<\/h3>\n

Steve Way prosazuje univerz\u00e1ln\u00ed zdravotn\u00ed p\u00e9\u010di, pr\u00e1va zdravotn\u011b posti\u017een\u00fdch a v\u00edce filmov\u00fdch rol\u00ed pro zdravotn\u011b posti\u017een\u00e9 herce. \u00a0<\/p>\n

Od Scott Fontana 7. srpna 2020<\/p>\n

J\u00f3ga pro lidi se svalovou dystrofi\u00ed<\/h3>\n

Bez ohledu na \u00farove\u0148 va\u0161eho posti\u017een\u00ed je mo\u017en\u00e9 cvi\u010den\u00ed j\u00f3gy, kter\u00e9 p\u0159in\u00e1\u0161\u00ed du\u0161evn\u00ed a fyzick\u00e9 v\u00fdhody. \u00a0<\/p>\n

Od Becky Upham 7. srpna 2020<\/p>\n

Mluven\u00ed o svalov\u00e9 dystrofii: Glos\u00e1\u0159 pojm\u016f pou\u017e\u00edvan\u00fdch k popisu symptom\u016f, test\u016f, l\u00e9\u010dby a dal\u0161\u00edch<\/h3>\n

Tato rychl\u00e1 abecedn\u00ed p\u0159\u00edru\u010dka v\u00e1m pom\u016f\u017ee c\u00edtit se jist\u011bji, kdy\u017e mluv\u00edte o svalov\u00e9 dystrofii se sv\u00fdm l\u00e9ka\u0159em a bl\u00edzk\u00fdmi. <\/p>\n

Od Becky Upham 30. \u010dervence 2020<\/p>\n

Co pot\u0159ebujete v\u011bd\u011bt o t\u011bhotenstv\u00ed a svalov\u00e9 dystrofii<\/h3>\n

P\u0159edkoncep\u010dn\u00ed poradenstv\u00ed se d\u016frazn\u011b doporu\u010duje \u017een\u00e1m, kter\u00e9 maj\u00ed svalovou dystrofii nebo jsou nositelkami genov\u00e9 mutace, kter\u00e1 ji zp\u016fsobuje. <\/p>\n

Od Becky Upham 13. \u010dervence 2020<\/p>\n

Adaptivn\u00ed techniky a za\u0159\u00edzen\u00ed pro Duchennovu svalovou dystrofii<\/h3>\n

Zat\u00edmco t\u00e9m\u011b\u0159 ka\u017ed\u00fd s Duchenne bude nakonec muset pou\u017e\u00edvat invalidn\u00ed voz\u00edk, jin\u00e1 za\u0159\u00edzen\u00ed a terapie mohou pomoci s mobilitou p\u0159ed i po. . . <\/p>\n

Od Quinn Phillips, 10. \u010dervence 2020<\/p>\n

Podpora a zdroje pro Duchennovu svalovou dystrofii<\/h3>\n

\u017d\u00edt s Duchennem nebo s n\u00edm m\u00edt d\u00edt\u011b m\u016f\u017ee b\u00fdt obt\u00ed\u017en\u00e9, ale jsou k dispozici zdroje, kter\u00e9 v\u00e1m poskytnou praktickou podporu a pomohou v\u00e1m c\u00edtit se m\u00e9n\u011b sami. <\/p>\n

Od Quinn Phillips, 10. \u010dervence 2020<\/p>\n

Co pot\u0159ebujete v\u011bd\u011bt o genov\u00e9 terapii svalov\u00e9 dystrofie Duchenne<\/h3>\n

Genov\u00e1 terapie je p\u0159ipravena zp\u016fsobit revoluci v zach\u00e1zen\u00ed s Duchenne, ale st\u00e1le existuj\u00ed ur\u010dit\u00e9 probl\u00e9my s t\u00edmto p\u0159\u00edstupem, kter\u00e9 je t\u0159eba vy\u0159e\u0161it. <\/p>\n

Od Quinna Phillipse, 9. \u010dervence 2020<\/p>\n

Jak se l\u00e9\u010d\u00ed svalov\u00e1 dystrofie? Fyzik\u00e1ln\u00ed terapie, chirurgie, l\u00e9ky a dal\u0161\u00ed<\/h3>\n

Od Briana P. Dunleavyho, 8. \u010dervence 2020<\/p>\n

Jak\u00e9 jsou nejlep\u0161\u00ed mo\u017enosti l\u00e9\u010dby svalov\u00e9 dystrofie Duchenne?<\/h3>\n

Steroidn\u00ed terapie je standardn\u00ed l\u00e9\u010dbou pro Duchenne, zat\u00edmco jin\u00e1 l\u00e9\u010dba bude z\u00e1viset na va\u0161ich konkr\u00e9tn\u00edch p\u0159\u00edznac\u00edch a stavu. <\/p>\n

Od Quinn Phillips, 8. \u010dervence 2020<\/p>\n

Jak je diagnostikov\u00e1na Duchennova svalov\u00e1 dystrofie?<\/h3>\n

Po po\u010d\u00e1te\u010dn\u00edch krevn\u00edch testech v\u00e1\u0161 l\u00e9ka\u0159 na\u0159\u00edd\u00ed genetick\u00fd test na Duchenne, pokud existuje podez\u0159en\u00ed na tento stav. <\/p>\n

Od Quinna Phillipse, 7. \u010dervence 2020 \u201c<\/p>\n

V\u00fdhled pro dosp\u011bl\u00e9 s Downov\u00fdm syndromem se za posledn\u00edch n\u011bkolik desetilet\u00ed drasticky zm\u011bnil. \u00a0<\/p>\n

Mnoho lid\u00ed s Downov\u00fdm syndromem pracuje a m\u00e1 nez\u00e1vislost. <\/p>\n

D\u0159\u00edve se st\u00e1valo, \u017ee dosp\u011bl\u00ed s Downov\u00fdm syndromem ve skute\u010dnosti nedostali \u0161anci. Na po\u010d\u00e1tku 20. stolet\u00ed m\u011bl \u010dlov\u011bk s Downov\u00fdm syndromem \u017e\u00edt m\u00e9n\u011b ne\u017e 10 let. Dnes se mnoho lid\u00ed s genetickou poruchou do\u017e\u00edv\u00e1 pades\u00e1t\u00fdch a \u0161edes\u00e1t\u00fdch let. (1)<\/p>\n

\u00abExistuje star\u00e1 my\u0161lenka, \u017ee n\u011bkdo s Downov\u00fdm syndromem nebude schopen z\u00edskat pr\u00e1ci nebo \u017e\u00edt samostatn\u011b,\u00bb \u0159\u00edk\u00e1 Kishore Vellody, MD, l\u00e9ka\u0159sk\u00fd \u0159editel centra Downova syndromu v d\u011btsk\u00e9 nemocnici v Pittsburghu UPMC v Pensylv\u00e1nii. <\/p>\n

Ale toto my\u0161len\u00ed u\u017e ve skute\u010dnosti neobstoj\u00ed, \u0159\u00edk\u00e1. Nyn\u00ed mnoho lid\u00ed s Downov\u00fdm syndromem pracuje a m\u00e1 nez\u00e1vislost. To neznamen\u00e1, \u017ee dosp\u011blost s Downov\u00fdm syndromem s sebou nep\u0159in\u00e1\u0161\u00ed v\u00fdzvy, ani nutn\u011b nevypad\u00e1 stejn\u011b jako dosp\u011blost u lid\u00ed bez tohoto onemocn\u011bn\u00ed. Zde je n\u011bkolik dal\u0161\u00edch informac\u00ed o tom, co o\u010dek\u00e1vat. <\/p>\n

N\u011bkte\u0159\u00ed dosp\u011bl\u00ed s Downov\u00fdm syndromem mohou \u017e\u00edt sami; Jin\u00ed \u017eij\u00ed ve skupinov\u00e9m prost\u0159ed\u00ed<\/h2>\n

Lid\u00e9 s Downov\u00fdm syndromem maj\u00ed \u0161irokou \u0161k\u00e1lu schopnost\u00ed, \u0159\u00edk\u00e1 Brian Chicoine, MD, l\u00e9ka\u0159sk\u00fd \u0159editel Centra pro syndrom dosp\u011bl\u00fdch dosp\u011bl\u00fdch ve V\u0161eobecn\u00e9 nemocnici Advocate Lutheran v Park Ridge, Illinois. A to znamen\u00e1, \u017ee jak\u00e9 mo\u017enosti jsou k dispozici pro n\u011bkter\u00e9 lidi s v\u00fdvojovou poruchou, nemus\u00ed b\u00fdt nutn\u011b dobr\u00e9 pro ostatn\u00ed. N\u011bkte\u0159\u00ed jednotlivci nemaj\u00ed probl\u00e9m jet vlakem nebo autobusem a v\u011bnovat se sv\u00fdm ka\u017edodenn\u00edm aktivit\u00e1m. N\u011bkte\u0159\u00ed jezd\u00ed sami v aut\u011b, zat\u00edmco jin\u00ed jsou n\u00e1ro\u010dn\u011bj\u0161\u00ed. <\/p>\n

Proto\u017ee mnoho lid\u00ed s Downov\u00fdm syndromem se snadno obejde, tito jedinci mohou b\u00fdt schopni \u017e\u00edt sami, a\u0165 u\u017e jsou zcela nez\u00e1visl\u00ed a \u017eij\u00ed sami, nebo \u017eij\u00ed ve skupinov\u00e9m prost\u0159ed\u00ed s p\u0159\u00e1teli nebo rodinou, \u0159\u00edk\u00e1 Dr. Vellody. \u00abNyn\u00ed existuje [pro lidi s Downov\u00fdm syndromem] mnoho p\u0159\u00edle\u017eitost\u00ed k \u017eivotn\u00ed situaci, kter\u00e9 jsme nikdy p\u0159edt\u00edm nev\u011bd\u011bli, proto\u017ee jim tyto p\u0159\u00edle\u017eitosti nikdy nebyly d\u00e1ny,\u00bb \u0159\u00edk\u00e1 Vellody. <\/p>\n

V cel\u00e9 zemi existuje mnoho organizac\u00ed a agentur (nap\u0159\u00edklad The Arc), kter\u00e9 pom\u00e1haj\u00ed dosp\u011bl\u00fdm s Downov\u00fdm syndromem naj\u00edt vhodn\u00e9 \u017eivotn\u00ed podm\u00ednky. (2) \u201eMo\u017enosti se pohybuj\u00ed od domov\u016f s vysok\u00fdm po\u010dtem zam\u011bstnanc\u016f, kter\u00e9 jsou pod dohledem 24 hodin denn\u011b, a\u017e po podp\u016frn\u00e9 \u017eivotn\u00ed situace, kdy zam\u011bstnanci mohou poskytovat pomoc 15 a\u017e 20 hodin t\u00fddn\u011b,\u201c \u0159\u00edk\u00e1 Higgins. <\/p>\n

Doktor Chicoine odhaduje, \u017ee asi polovina pacient\u016f v Centru syndromu dosp\u011bl\u00fdch dosp\u011bl\u00fdch, kde pracuje, \u017eije v rodinn\u00e9m dom\u011b s rodi\u010di nebo sourozenci a druh\u00e1 polovina \u017eije v podporovan\u00e9m skupinov\u00e9m \u017eivotn\u00edm prost\u0159ed\u00ed. \u00abM\u00e1me hrstku jednotlivc\u016f, kte\u0159\u00ed \u017eij\u00ed zcela sami – ale v\u00edce jich \u017eije s rodinou nebo profesion\u00e1ln\u00ed organizac\u00ed,\u00bb \u0159\u00edk\u00e1 Chicoine. <\/p>\n

Lid\u00e9 s Downov\u00fdm syndromem mohou j\u00edt na vysokou \u0161kolu a dr\u017eet zam\u011bstn\u00e1n\u00ed<\/h2>\n

Po st\u0159edn\u00ed \u0161kole maj\u00ed lid\u00e9 s Downov\u00fdm syndromem mo\u017enost pokra\u010dovat ve vzd\u011bl\u00e1v\u00e1n\u00ed. N\u011bkter\u00e9 vysok\u00e9 \u0161koly, jako je Univerzita v\u00fdchodn\u00edho Nov\u00e9ho Mexika v Roswellu, nab\u00edzej\u00ed programy ur\u010den\u00e9 pro osoby se zdravotn\u00edm posti\u017een\u00edm, jako je Down\u016fv syndrom. (3)<\/p>\n

Ostatn\u00ed lid\u00e9 s Downov\u00fdm syndromem se mohou rozhodnout naj\u00edt si pr\u00e1ci, jakmile dos\u00e1hnou dosp\u011blosti. Stejn\u011b jako existuj\u00ed agentury, kter\u00e9 pom\u00e1haj\u00ed s mo\u017enostmi bydlen\u00ed, existuj\u00ed organizace, kter\u00e9 pom\u00e1haj\u00ed lidem s Downov\u00fdm syndromem naj\u00edt pr\u00e1ci. <\/p>\n

The National Down Syndrome Society (NDDS) kategorizuje n\u00e1sleduj\u00edc\u00ed t\u0159i typy zam\u011bstn\u00e1n\u00ed dostupn\u00e9 lidem s Downov\u00fdm syndromem: (4)<\/p>\n

Konkurenceschopn\u00e9 zam\u011bstn\u00e1n\u00ed Tyto pozice jsou podobn\u00e9 p\u0159\u00edle\u017eitostem, kter\u00e9 by m\u011bl ka\u017ed\u00fd, kdo hled\u00e1 pr\u00e1ci. Rozd\u00edl je v tom, harmoniqhealth.com<\/a> \u017ee osoba s Downov\u00fdm syndromem m\u016f\u017ee \u00fazce spolupracovat s kou\u010dem pr\u00e1ce nebo specialistou na zam\u011bstn\u00e1n\u00ed, aby se pomalu uvolnila do pozice. Osoba s Downov\u00fdm syndromem bude \u010dasto m\u00edt prosp\u011bch z n\u00e1sledn\u00e9ho specialisty, kter\u00fd se p\u0159ihl\u00e1s\u00ed, aby zjistil, jak se v\u011bci vyv\u00edjej\u00ed. Podporovan\u00e9 zam\u011bstn\u00e1v\u00e1n\u00ed Je to podobn\u00e9 jako u konkuren\u010dn\u00edho zam\u011bstn\u00e1n\u00ed, ale m\u00e1 zaveden dlouhodob\u00fd syst\u00e9m podpory, kter\u00fd pom\u00e1h\u00e1 jednotlivci usp\u011bt ve sv\u00e9 roli. Pozn\u00e1mka: Jak dlouho bude podpora dostupn\u00e1, mohou b\u00fdt \u010dasov\u011b omezena. Dal\u0161\u00ed pozn\u00e1mka: Ke konkurenceschopn\u00e9mu i podporovan\u00e9mu zam\u011bstn\u00e1n\u00ed doch\u00e1z\u00ed v komunit\u011b na skute\u010dn\u00fdch pracovn\u00edch m\u00edstech. Chr\u00e1n\u011bn\u00e9 zam\u011bstn\u00e1n\u00ed Zam\u011bstn\u00e1n\u00ed v tomto typu prost\u0159ed\u00ed obvykle zahrnuje pr\u00e1ci s jin\u00fdmi osobami se zdravotn\u00edm posti\u017een\u00edm p\u0159i pln\u011bn\u00ed administrativn\u00edch \u00fakol\u016f, jako je nap\u0159\u00edklad pln\u011bn\u00ed ob\u00e1lek. Kritici tvrd\u00ed, \u017ee tato nastaven\u00ed podporuj\u00ed segregaci mezi lidmi se zdravotn\u00edm posti\u017een\u00edm a t\u011bmi bez. <\/p>\n

Stejn\u011b jako pro kohokoli je kl\u00ed\u010dov\u00e9 naj\u00edt spr\u00e1vnou roli pro osobnost jednotlivce. Nap\u0159\u00edklad osoba se smyslov\u00fdmi probl\u00e9my pravd\u011bpodobn\u011b nebude dob\u0159e fungovat v hlasit\u00fdch kancel\u00e1\u0159sk\u00fdch prostorech a osoba, kter\u00e1 se pot\u0159ebuje hodn\u011b pohybovat, nebude podle NDDS vhodn\u00e1 pro pr\u00e1ci, kter\u00e1 je p\u0159ev\u00e1\u017en\u011b sedav\u00e1. <\/p>\n

\u00abJe d\u016fle\u017eit\u00e9, aby programy zam\u011bstnanosti zji\u0161\u0165ovaly siln\u00e9 str\u00e1nky jednotlivce a nach\u00e1zely p\u0159\u00edle\u017eitosti, kter\u00e9 je d\u011blaj\u00ed \u0161\u0165astn\u00fdmi, v nich\u017e mohou b\u00fdt \u00fasp\u011b\u0161n\u00ed a na kter\u00e9 se t\u011b\u0161\u00ed,\u00bb \u0159\u00edk\u00e1 Kathy Higgins, koordin\u00e1torka pro styk s rodinou a v\u010dasn\u00e1 intervence v The Arc Westchester’s Children’s School for Early Development v Hawthorne, New York. <\/p>\n

Michelle Sie Whitten, gener\u00e1ln\u00ed \u0159editelka nadace Global Down Syndrome Foundation v Denveru, navrhuje polo\u017eit n\u011bkolik z\u00e1kladn\u00edch ot\u00e1zek, kter\u00e9 pomohou ur\u010dit, kter\u00e1 role je pro jednotlivce nejvhodn\u011bj\u0161\u00ed: Jak se tam dostanu? Mohu se tam dostat v\u010das? Jsem s typem pr\u00e1ce spokojen\u00fd? Jsem si jist\u00fd, \u017ee to zvl\u00e1dnu? Jakou dal\u0161\u00ed podporu budu pot\u0159ebovat a bude tuto podporu zam\u011bstnavatel nab\u00edzet?<\/p>\n

Dobrovolnick\u00e1 pr\u00e1ce m\u016f\u017ee b\u00fdt tak\u00e9 dobrou volbou pro n\u011bkoho, kdo se v\u00edce zaj\u00edm\u00e1 o \u0161kolen\u00ed ne\u017e o placen\u00ed dom\u016f. <\/p>\n

Data z pr\u016fzkumu zve\u0159ejn\u011bn\u00e9ho v dubnu 2015 v \u010dasopise Journal of Applied Research in Intellectual Disabilities, kter\u00fd zkoumal zam\u011bstnaneck\u00fd status 511 Ameri\u010dan\u016f s Downov\u00fdm syndromem, zjistili, \u017ee bylo zam\u011bstn\u00e1no asi 57 procent, ale jen asi 3 procenta byli placeni zam\u011bstnanci na pln\u00fd \u00favazek. (1) Nejb\u011b\u017en\u011bj\u0161\u00edmi druhy zam\u011bstn\u00e1n\u00ed byly restaurace nebo stravov\u00e1n\u00ed (19 procent), kancel\u00e1\u0159sk\u00e9 prost\u0159ed\u00ed (19 procent), \u00faklid (14 procent) a obchody s potravinami (12 procent). <\/p>\n

Jednou z oblast\u00ed, kter\u00e1 nebyla \u010dasto zmi\u0148ov\u00e1na, byla technologie, p\u0159esto\u017ee 69 procent dosp\u011bl\u00fdch s Downov\u00fdm syndromem uvedlo, \u017ee pou\u017e\u00edvaj\u00ed po\u010d\u00edta\u010de. Vellody si mysl\u00ed, \u017ee je to oblast s budouc\u00edmi pracovn\u00edmi p\u0159\u00edle\u017eitostmi. Lid\u00e9 s Downov\u00fdm syndromem \u201ezvl\u00e1daj\u00ed pr\u00e1ci s po\u010d\u00edta\u010dem opravdu dob\u0159e,\u201c \u0159\u00edk\u00e1. \u00abPod\u00e1te n\u011bkomu s Downov\u00fdm syndromem iPad a oni na to mohou v\u011bt\u0161inou p\u0159ij\u00edt rychleji, ne\u017e v\u011bt\u0161ina z n\u00e1s.\u00bb \u201d<\/p>\n

Slu\u017eby podpory pro dosp\u011bl\u00e9 s Downov\u00fdm syndromem mohou b\u00fdt omezeny; B\u011b\u017en\u00e1 l\u00e9ka\u0159sk\u00e1 p\u00e9\u010de je d\u016fle\u017eit\u00e1<\/h2>\n

V d\u011btstv\u00ed m\u00e1 \u010dlov\u011bk s Downov\u00fdm syndromem t\u00fdm terapeut\u016f, se kter\u00fdmi se pravideln\u011b setk\u00e1v\u00e1. Ale Chicoine \u0159\u00edk\u00e1, \u017ee tyto zdroje \u010dasto zmiz\u00ed, jak lid\u00e9 st\u00e1rnou. <\/p>\n

\u00abTerapie k l\u00e9\u010db\u011b Downova syndromu per se, jak byste vid\u011bli u mal\u00e9ho d\u00edt\u011bte, nejsou obvykle k dispozici pro dosp\u011bl\u00e9,\u00bb \u0159\u00edk\u00e1. \u0158\u00edk\u00e1, \u017ee spousta pacient\u016f, kter\u00e9 vid\u00ed, by mohla vyu\u017e\u00edt dal\u0161\u00ed podporu p\u0159i osvojov\u00e1n\u00ed \u017eivotn\u00edch dovednost\u00ed, jako je va\u0159en\u00ed a \u00faklid. Ale \u010dasto maj\u00ed sm\u016flu, pokud nenastane jin\u00fd zdravotn\u00ed probl\u00e9m, jako je zlomenina ky\u010dle, v tomto okam\u017eiku by poji\u0161t\u011bn\u00ed mohlo pokr\u00fdt terapeuta. <\/p>\n

Jak lid\u00e9 s Downov\u00fdm syndromem st\u00e1rnou, je d\u016fle\u017eit\u00e9 pokra\u010dovat v b\u011b\u017en\u00e9 l\u00e9ka\u0159sk\u00e9 p\u00e9\u010di a kontrol\u00e1ch. Lid\u00e9 s genetickou poruchou maj\u00ed vy\u0161\u0161\u00ed riziko komplikac\u00ed, v\u010detn\u011b gastrointestin\u00e1ln\u00edch probl\u00e9m\u016f, sp\u00e1nkov\u00e9 apnoe, obezity, Alzheimerovy choroby, leuk\u00e9mie a dal\u0161\u00edch zdravotn\u00edch probl\u00e9m\u016f. Udr\u017eov\u00e1n\u00ed zdrav\u00e9ho \u017eivotn\u00edho stylu a pravideln\u00e1 n\u00e1v\u0161t\u011bva l\u00e9ka\u0159e jsou jedny z nejlep\u0161\u00edch zp\u016fsob\u016f, jak v\u010das identifikovat komplikace a l\u00e9\u010dit je. (5)<\/p>\n

P\u0159ihlaste se k odb\u011bru na\u0161eho zpravodaje o zdrav\u00e9m \u017eivot\u011b!<\/p>\n

Redak\u010dn\u00ed zdroje a ov\u011b\u0159ov\u00e1n\u00ed fakt\u016f<\/h2>\n

Reference<\/p>\n

Kumin L, Schoenbrodt L. Zam\u011bstnanost dosp\u011bl\u00fdch s Downov\u00fdm syndromem ve Spojen\u00fdch st\u00e1tech: V\u00fdsledky z n\u00e1rodn\u00edho pr\u016fzkumu. Journal of Applied Research in Intellectual Disabilities. Duben 2015. The Arc. Speci\u00e1ln\u00ed slu\u017eby. Univerzita v\u00fdchodn\u00edho Nov\u00e9ho Mexika – Roswell. Zam\u011bstnanost a dobrovolnick\u00e1 pr\u00e1ce. N\u00e1rodn\u00ed spole\u010dnost pro Down\u016fv syndrom. Down\u016fv syndrom. Klinika Mayo. 8. b\u0159ezna 2018. Uk\u00e1zat m\u00e9n\u011b<\/p>\n

Nejnov\u011bj\u0161\u00ed v Downov\u011b syndromu<\/h2>\n

Herec a komik se svalovou dystrofi\u00ed pracuje na otev\u00edr\u00e1n\u00ed dve\u0159\u00ed pro dal\u0161\u00ed p\u0159\u00edb\u011bhy se zdravotn\u00edm posti\u017een\u00edm<\/h3>\n

Steve Way prosazuje univerz\u00e1ln\u00ed zdravotn\u00ed p\u00e9\u010di, pr\u00e1va zdravotn\u011b posti\u017een\u00fdch a v\u00edce filmov\u00fdch rol\u00ed pro zdravotn\u011b posti\u017een\u00e9 herce. \u00a0<\/p>\n

Od Scott Fontana 7. srpna 2020<\/p>\n

J\u00f3ga pro lidi se svalovou dystrofi\u00ed<\/h3>\n

Bez ohledu na \u00farove\u0148 va\u0161eho posti\u017een\u00ed je mo\u017en\u00e9 cvi\u010den\u00ed j\u00f3gy, kter\u00e9 p\u0159in\u00e1\u0161\u00ed du\u0161evn\u00ed a fyzick\u00e9 v\u00fdhody. \u00a0<\/p>\n

Od Becky Upham 7. srpna 2020<\/p>\n

Mluven\u00ed o svalov\u00e9 dystrofii: Glos\u00e1\u0159 pojm\u016f pou\u017e\u00edvan\u00fdch k popisu symptom\u016f, test\u016f, l\u00e9\u010dby a dal\u0161\u00edch<\/h3>\n

Tato rychl\u00e1 abecedn\u00ed p\u0159\u00edru\u010dka v\u00e1m pom\u016f\u017ee c\u00edtit se jist\u011bji, kdy\u017e mluv\u00edte o svalov\u00e9 dystrofii se sv\u00fdm l\u00e9ka\u0159em a bl\u00edzk\u00fdmi. <\/p>\n

Od Becky Upham 30. \u010dervence 2020<\/p>\n

Co pot\u0159ebujete v\u011bd\u011bt o t\u011bhotenstv\u00ed a svalov\u00e9 dystrofii<\/h3>\n

P\u0159edkoncep\u010dn\u00ed poradenstv\u00ed se d\u016frazn\u011b doporu\u010duje \u017een\u00e1m, kter\u00e9 maj\u00ed svalovou dystrofii nebo jsou nositelkami genov\u00e9 mutace, kter\u00e1 ji zp\u016fsobuje. <\/p>\n

Od Becky Upham 13. \u010dervence 2020<\/p>\n

Adaptivn\u00ed techniky a za\u0159\u00edzen\u00ed pro Duchennovu svalovou dystrofii<\/h3>\n

Zat\u00edmco t\u00e9m\u011b\u0159 ka\u017ed\u00fd s Duchenne bude nakonec muset pou\u017e\u00edvat invalidn\u00ed voz\u00edk, jin\u00e1 za\u0159\u00edzen\u00ed a terapie mohou pomoci s mobilitou p\u0159ed i po. . . <\/p>\n","protected":false},"excerpt":{"rendered":"

Eastern New Mexico University – Roswell. Zam\u011bstnanost a dobrovolnick\u00e1 pr\u00e1ce V n\u011bkter\u00fdch p\u0159\u00edpadech mohou b\u00fdt tyto slu\u017eby kryty pl\u00e1ny soukrom\u00e9ho poji\u0161t\u011bn\u00ed a v jin\u00fdch p\u0159\u00edpadech mohou n\u00e1klady klesnout na jednotlivce a jejich rodiny, poznamen\u00e1v\u00e1 Vellody. Mlad\u00ed dosp\u011bl\u00ed s Downov\u00fdm syndromem mohou b\u00fdt ve t\u0159\u00edd\u011b \u00fasp\u011b\u0161n\u00ed Dokonce je\u0161t\u011b p\u0159ed 15 nebo 20 lety existovalo stigma kolem … <\/p>\n

Continuar leyendo \u00abEastern New Mexico University – Roswell. Zam\u011bstnanost a dobrovolnick\u00e1 pr\u00e1ce\u00bb<\/span><\/a><\/p>\n","protected":false},"author":5,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[387],"tags":[],"_links":{"self":[{"href":"http:\/\/sardstores.com\/index.php\/wp-json\/wp\/v2\/posts\/20698"}],"collection":[{"href":"http:\/\/sardstores.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/sardstores.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/sardstores.com\/index.php\/wp-json\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"http:\/\/sardstores.com\/index.php\/wp-json\/wp\/v2\/comments?post=20698"}],"version-history":[{"count":0,"href":"http:\/\/sardstores.com\/index.php\/wp-json\/wp\/v2\/posts\/20698\/revisions"}],"wp:attachment":[{"href":"http:\/\/sardstores.com\/index.php\/wp-json\/wp\/v2\/media?parent=20698"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/sardstores.com\/index.php\/wp-json\/wp\/v2\/categories?post=20698"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/sardstores.com\/index.php\/wp-json\/wp\/v2\/tags?post=20698"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}